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Sweeper from Jersey - otherwise, check my non-sweeps identity, Mary L Cottingham

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Saturday, March 13, 2010

What is the deal with the big First Giving badge?

If you've been to my blog recently, you cannot miss my First Giving badge, front and center -- smack in the middle of the home page.  Once again this year, I'm participating in Dress Up 2 Cure, the annual fundraiser for the Rett Syndrome charity, Girl Power 2 Cure... which (as a point of disclosure) was founded by my dear friend Ingrid Love Harding after her daughter Sarah was diagnosed with the disease in August 2005.

What is Rett Syndrome?  One of the most descriptive synopses of this neurological disorder I have read comes directly from the Rett Syndrome Research Trust, “Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders…all in one little girl.”

A new source of motivation for me this year has been the tag line from the movie Extraordinary Measures:

Don't hope for a miracle.  Make one.

The more I learn about John Crowley and his quest to save his children from Pompe disease, the more parallels I see to Ingrid.  If he can make a miracle, so can she... with a little help from the rest of us.  To that end, I’ll be dressing up in a costume and going to the office on April Fool’s Day once again this year., and invite you to join the fight by supporting my effort to:

Get Silly.  Spread Hope.
Cure Rett Syndrome.

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